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Br J Dermatol：T-QoL——量化皮肤病对青少年的生活质量的影响

2017-08-27 MedSci MedSci原创

皮肤病青少年生活质量
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青春本是人生当中最美丽的时候，但是青少年皮肤问题的出现打碎了他们心里的梦，如何量化皮肤病对青少年的生活质量的影响？本研究旨在开发并验证一个用于青少年的皮肤疾病评估的皮肤特异性的生活质量（QoL）工具。研究人员对患有皮肤疾病的青少年进行了半结构式访谈，深入了解皮肤病对其生活质量的影响。通过对访谈内容分析确定的以主题为基础的合适工具接受了几个阶段的测试，研究人员采用经典测验理论（CTT）和项目响应理论

青春本是人生当中最美丽的时候，但是青少年皮肤问题的出现打碎了他们心里的梦，如何量化皮肤病对青少年的生活质量的影响？本研究旨在开发并验证一个用于青少年的皮肤疾病评估的皮肤特异性的生活质量（QoL）工具。研究人员对患有皮肤疾病的青少年进行了半结构式访谈，深入了解皮肤病对其生活质量的影响。通过对访谈内容分析确定的以主题为基础的合适工具接受了几个阶段的测试，研究人员采用经典测验理论（CTT）和项目响应理论（IRT）模型来开发这个新工具，同时还对它进行了心理评估。研究人员从50名青少年参与者的对话中确定了33个生活质量问题。一个通过对访谈内容分析推断出的基于项目的调查问卷被Rasch分析分类。最后的18项调查问卷的心理测量学评价在一个包含了203名青少年的队列中进行。Skindex-Teen和CDLQI/DLQI的显著相关证明了同证效应。T-QoL表现出了良好的内部一致性：总评分的Cronbach's α=0.89，第1、2、3区域的评分分别为0.85、0.60和0.74。再测信度的稳定性较高。T-QoL在两组患者的改变中表现出了敏感性，而这些患者的疾病严重程度的自我评估出现了变化。研究人员认为

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    2018-08-06 lancelotzzl

    #QOL#

    0

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    2018-08-09 一叶知秋

    #皮肤病#

    0

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    2017-09-03 lofter

    学习了.感谢分享

    0

  4. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmhead/Q3auHgzwzM6P57Bs8gOPaY1cQP9lIia0lmZOEXraGaoicqNToIslXDKw/0, createdBy=7a041951742, createdName=衣带渐宽, createdTime=Mon Aug 28 09:26:04 CST 2017, time=2017-08-28, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=237950, encodeId=4ed623e950a6, content=学习.谢谢分享, beContent=null, objectType=article, channel=null, level=null, likeNumber=62, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/aLGWoFXAyMbIu3qymFOyhb9xDeHojCicsdRdyC3XXdGk2ib9yLypZuHN06WeW4HO8WN0GGrgEfvnTX8gsckof05GHOU5OM4Mvx/0, createdBy=9cee1982656, createdName=执着追梦, createdTime=Mon Aug 28 08:45:43 CST 2017, time=2017-08-28, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=237937, encodeId=d3a423e93739, content=谢谢分享.学习了, beContent=null, objectType=article, channel=null, level=null, 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-29 Jackie Li

    学习

    0

  5. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 Y—xianghai

    学习了新知识

    0

  6. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 衣带渐宽

    学习

    0

  7. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 执着追梦

    学习.谢谢分享

    0

  8. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 明月清辉

    谢谢分享.学习了

    0

  9. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 yfjms

    学习了

    0

  10. 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topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/ajNVdqHZLLBWOEtiahpXHGVdbFId5PLgK775YNA1ria3lM9KsJT6iczgIhov5sobd1Nr0raUBP58GkUDzvfDic9RCg/0, createdBy=0d021989245, createdName=189****1577, createdTime=Mon Aug 28 06:34:31 CST 2017, time=2017-08-28, status=1, ipAttribution=)]
    2017-08-28 189****1577

    值得推荐一下

    0

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干性鳞状皮肤，起泡，皮疹。许多人在生命中的某个时间会遇到某种皮肤问题，如果只是短暂的话问题不大。然而，一些人在整个生命中受到慢性皮肤问题的严重影响。大多数遇到任何皮肤问题的患者都会同意，皮